Our Services and Programs Include:

  • Support groups – Kansas: Wichita and Lawrence
  • Diagnostic / professional care
  • Out-patient clinic
  • Genetic testing
  • Supportive diagnostic testing
  • Crisis intervention
  • Educational services:
    • Professionals
    • At-risk families
    • Community at-large
  • Research opportunities – Huntington Study Group
  • Brain donor program
  • Newsletter
  • Patient advocacy
In 1967, folk-singer Woody Guthrie died from complications of Huntington Disease. His widow, Marjorie Guthrie, went on to become an advocate for research leading to Wichita hosting public testimony for a Congressional Hearing on HD in 1977. 

In 1967, folk-singer Woody Guthrie died from complications of Huntington Disease. His widow, Marjorie Guthrie, went on to become an advocate for research leading to Wichita hosting public testimony for a Congressional Hearing on HD in 1977.